“He wants to eat but he can’t!” … are the words spoken by his mother, with tears in her eyes. If everyone finds out his story, he will have a chance at life. Emi, a boy under 44 lb at the age of 12, suffers from a rare disease known as SMN1. It is a spinal muscular atrophy – a rare genetic mutation that weakens the entire muscular system, completely deforming it.
Although he is fully aware, Emi depends on the devices that keep him alive. Both the treatment and the hope that we will meet in years and years cost a lot. After his father’s death, something started and Emi became today’s child.
“I’m with him all the time, I can’t leave … he can pass away anytime!” .. his mother tells us, shedding streams of tears that would fill the bed of a river.
An intervention in Italy would help him to eat normally. Thus the body would become stronger, preparing it for another intervention. It is in our power, of all of us to work a miracle!
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