Mom thought she could postpone the moment
The mother thought that she could postpone the moment when she would give her son the answer to this question, but seeing that the son had many questions about this, she decided that the time had come to tell him the truth. He explained that his sister is not like other people and that she is special.
The child’s question if his sister would love him made the mother burst into tears.
The day came when the mother told her son that his sister had a syndrome. The woman always thought with horror about the moment when she will have to explain to her boy that the girl is different from the other people and that she suffers from a syndrome.
He didn’t try to hide this from her, but he thought about how the little boy would react when he found out. Although small, this was not very noticeable, as they grew larger, the differences did not stop appearing. As his sister, Maci, grows up, these differences will become more apparent. Maci will be a little girl who will be different from her friends, her colleagues and she knew she would have to discuss these issues with Jake at some point, but she didn’t expect it so soon.
After the boy found a magnet that their mother received from a conference based on this syndrome that occurs in certain children, he became curious and began to ask his mother what it was all about.
The boy asked if this was the reason why Maci, his sister, was born with half a heart.
The girl was born with HLHS syndrome, which means left heart hypoplastic syndrome, and refers to the fact that the left side of the heart does not develop enough and the aorta is too small. The woman explained to Jake that this could lead to speech differences when she grows up or that Maci would never be able to speak.
He also told her that she might have to use certain devices to get around, that it would be difficult for her to learn, and that she would not be able to do all the things a healthy person can do. After all these things his mother told him, Jake rolled his eyes and worried and his only curiosity was whether his sister would love him and want to play with him. His mother told him that he would surely be her best friend and that he would have to cherish her the most.